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Bentley

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Bentley is a sweet girl who was diagnosed with GRIN1 at just 2 weeks old.

GRIN1 does not define Bentley. She is a baby sister, a granddaughter, the best at sleeping at night and can be the sweetest girl, as long as you are holding her. Bentley has come very far in her therapies, but it has been a very long process for her. 

She struggles with high muscle tone, abnormal movements, developmental delays and respiratory issues.

She is involved in numerous therapies to help her symptoms, but with your support, we can hopefully find more therapies to help her tolerate these things better, and maybe one day – a cure.

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Kendall

Seeing her smile brings joy to our hearts and we hope that someday there will be a cure for her GRIN Disorder.

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Alice

At 6 months old, the same day she received the meningococco B vaccine , she had her first convulsive seizure.