CureGRIN Foundation https://curegrin.org/ GRIA, GRID, GRIK, and GRIN - GRI Disorders Sat, 15 Feb 2025 15:12:43 +0000 en-US hourly 1 https://wordpress.org/?v=6.7.2 https://curegrin.org/wp-content/uploads/2020/05/favicon.jpg CureGRIN Foundation https://curegrin.org/ 32 32 Rowan https://curegrin.org/rowan/ Sat, 15 Feb 2025 15:10:20 +0000 https://curegrin.org/?p=14832 Rowan is our 4 year old Bee. He is so happy, lovable, and just happy go lucky all the time. Never forgets a face.

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]]> Ansel https://curegrin.org/ansel/ Thu, 13 Feb 2025 18:28:49 +0000 https://curegrin.org/?p=14824 The floor underneath our feet collapsed. We found out soon after that Ansel had a rare genetic mutation called Grin2b.

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]]> GRI Disorder Awareness Month – 2025 https://curegrin.org/gri-disorder-awareness-month/ Sun, 12 Jan 2025 23:08:44 +0000 https://curegrin.org/?p=13165 Join us for GRI Disorder Awareness Month in March.

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]]> Request for Proposals: Advancing Research for Treatments and Cures in GRI Disorders https://curegrin.org/request-for-proposals-advancing-research-for-treatments-and-cures-in-gri-disorders/ Mon, 16 Dec 2024 17:22:10 +0000 https://curegrin.org/?p=14688 CureGRIN is now accepting applications for research funding that will help advance and accelerate our search for treatments and cures for GRI Disorder (GRIN, GRIA, GRIK and GRID). 

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]]> 2025 Holiday Gift Guide https://curegrin.org/2025-holiday-gift-guide/ Fri, 13 Dec 2024 15:16:10 +0000 https://curegrin.org/?p=14681 Whatever holiday you celebrate, we are here to provide you with the perfect CureGRIN inspired gifts that keep on giving…to the recipient and to our kids!

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]]> 🎉 It’s Here! Stories of GRI is Officially Released! 🎉 https://curegrin.org/storiesofgri/ Fri, 13 Dec 2024 14:43:18 +0000 https://curegrin.org/?p=14665 We are beyond thrilled to announce that Stories of GRI e-book and paperback are now available!

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]]> Unraveling GRIA1 neurodevelopmental disorders: Lessons learned from the p.(Ala636Thr) variant https://curegrin.org/unraveling-gria1-neurodevelopmental-disorders-lessons-learned-from-the-p-ala636thr-variant/ Fri, 20 Sep 2024 00:04:09 +0000 https://curegrin.org/?p=14594 One of the mysteries about GRI disorders is why some patients are far more affected than others. It was interesting to find out that even among 8 patients with the same exact variant, there was a wide difference in abilities.

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]]> Radiprodil reduces seizures in GRIN (gain-of-function) patients by a median of 86% in first-ever commercial clinical trial for GRI Disorders https://curegrin.org/radiprodil-reduces-seizures-in-grin-gain-of-function-patients-by-a-median-of-86-in-first-ever-commercial-clinical-trial-for-gri-disorders/ Mon, 09 Sep 2024 18:34:33 +0000 https://curegrin.org/?p=14558 The potential treatment also led to clinical improvements in other symptoms, and was well tolerated from a safety perspective.

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]]> Count Me In 2024 https://curegrin.org/count-me-in-2024/ Tue, 03 Sep 2024 17:41:49 +0000 https://curegrin.org/?p=14480 CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.

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]]> Coming Soon: A Guide to Treating / Curing GRI Disorders https://curegrin.org/gri-disorders-guidebook/ Tue, 20 Aug 2024 17:50:25 +0000 https://curegrin.org/?p=14457 Last week, CureGRIN brought together the world’s top experts in GRI Disorder Research for a two-day symposium in Toronto, Canada where we discussed the suitability of every type of treatment for each GRI gene and class of variants. 

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