CureGRIN Foundation https://curegrin.org/ GRIA, GRID, GRIK, and GRIN - GRI Disorders Tue, 08 Oct 2024 02:16:59 +0000 en-US hourly 1 https://wordpress.org/?v=6.7 https://curegrin.org/wp-content/uploads/2020/05/favicon.jpg CureGRIN Foundation https://curegrin.org/ 32 32 Unraveling GRIA1 neurodevelopmental disorders: Lessons learned from the p.(Ala636Thr) variant https://curegrin.org/unraveling-gria1-neurodevelopmental-disorders-lessons-learned-from-the-p-ala636thr-variant/ Fri, 20 Sep 2024 00:04:09 +0000 https://curegrin.org/?p=14594 One of the mysteries about GRI disorders is why some patients are far more affected than others. It was interesting to find out that even among 8 patients with the same exact variant, there was a wide difference in abilities.

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]]> Radiprodil reduces seizures in GRIN (gain-of-function) patients by a median of 86% in first-ever commercial clinical trial for GRI Disorders https://curegrin.org/radiprodil-reduces-seizures-in-grin-gain-of-function-patients-by-a-median-of-86-in-first-ever-commercial-clinical-trial-for-gri-disorders/ Mon, 09 Sep 2024 18:34:33 +0000 https://curegrin.org/?p=14558 The potential treatment also led to clinical improvements in other symptoms, and was well tolerated from a safety perspective.

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]]> Count Me In 2024 https://curegrin.org/count-me-in-2024/ Tue, 03 Sep 2024 17:41:49 +0000 https://curegrin.org/?p=14480 CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.

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]]> Coming Soon: A Guide to Treating / Curing GRI Disorders https://curegrin.org/gri-disorders-guidebook/ Tue, 20 Aug 2024 17:50:25 +0000 https://curegrin.org/?p=14457 Last week, CureGRIN brought together the world’s top experts in GRI Disorder Research for a two-day symposium in Toronto, Canada where we discussed the suitability of every type of treatment for each GRI gene and class of variants. 

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]]> Rare Across America with Kat https://curegrin.org/rare-across-america-with-kat/ Tue, 20 Aug 2024 13:57:24 +0000 https://curegrin.org/?p=14431 My name is Kat Reiher, I am the lead Ambassador for CureGRIN, and I wanted to write about Rare Across America!

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]]> Early Results from GRI Census https://curegrin.org/early-results-from-gri-census/ Wed, 07 Aug 2024 19:16:56 +0000 https://curegrin.org/?p=14379 In just one week, nearly 150 families representing 10 genes and 16 countries have completed and submitted the GRI Census.

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]]> GRICON25 https://curegrin.org/gricon25/ Wed, 03 Jul 2024 13:45:44 +0000 https://curegrin.org/?p=14167 GRICON25 brings together GRI families, researchers and clinicians, and industry representatives from around the world to educate, collaborate and network for treatments and cures for GRI Disorders.

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]]> June 2024 GRI Genes Research Roundtable https://curegrin.org/june-2024-gri-genes-research-roundtable/ Tue, 18 Jun 2024 12:51:42 +0000 https://curegrin.org/?p=14128 New research revealed involving a clinical trial through GRIN Therapeutics, as well as an update to research on GRIN2B mice.

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]]> Bowling for GRI Disorders https://curegrin.org/bowling-for-gri-disorders/ Tue, 21 May 2024 15:14:08 +0000 https://curegrin.org/?p=14026 Join one of our awesome GRI Families and Bowl for GRI Disorders at Lane Glo Bowl South in New Port Richey, FL!

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]]> Get Moving for GRI in Massachusetts https://curegrin.org/get-moving-for-gri-in-massachusetts/ Tue, 21 May 2024 14:43:51 +0000 https://curegrin.org/?p=14020 Save the date! For the second year, the Leblanc’s and Forsyth’s are teaming up together to raise money and awareness for GRI Disorders!

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