Resources
GRIA, GRID, GRIK and GRIN
Find out what resources are available in your state and through CureGRIN.
GRI-Smart Physician Directory
Below you can find directories for US and International doctors available and updated frequently. If you know of a GRI-Smart Physician who is not included, please email Brittany@curegrin.org with the information.
GRI Disorder Science Basics & Glossary
These resources are designed to help GRI families understand scientific and clinical terms you might encounter.
GRI Disorder Support Groups
The CureGRIN Foundation provides support to individuals with GRI Disorders and their families through education and information. Another great way to learn about GRI Disorders is to connect with and learn from other parents on GRIConnect and the following Facebook communities.
GRIN1 Parent Support Group
GRIN2A Parent Support Group
GRIN2B Parent Support Group
GRIN2D Parent Support Group
GRIA, GRID, GRIK Parent Support Group
GRI Sibling Support Group
Family Ambassador Program
Our family ambassadors are dedicated volunteers that facilitate support and awareness of GRI resources through the Foundation, as well as the state/country you reside. All of our ambassadors are parents or grandparents of patients with GRI Disorders.
Click here to learn more about our ambassador program and how you can be involved!
CureGRIN YouTube Channel
Additional Resources
Rare Epilepsy Network
- What is developmental and epileptic encephalopathy (DEE)?
- DEE Toolkit
- Seizure First Aid and Safety
- Seizure Action Plans
- SUDEP Resource
- Drug Resistant Epilepsy
- Epilepsy Clinical Trials
- Epilepsy Legal Defense Fund
Angelman Syndrome Foundation
GeneReviews
GRIN1: https://www.ncbi.nlm.
GRIN2A: https://www.ncbi.nlm.nih.gov/books/NBK385627/
GRIN2B: https://www.ncbi.nlm.nih.gov/books/NBK501979/
GRIN2D: https://www.ncbi.nlm.nih.gov/books/NBK582335/
GRIA2: https://www.ncbi.nlm.
GRIN2A Epilepsy:
https://www.
GRIN Portal: https://grin-portal.
CDC Seizure First Aid: https://www.cdc.gov/
Child and Baby CPR: https://www.redcross.org/
CHOP
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CureGRIN Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to CureGRIN are tax-deductible. Fund research. Save a life.
