Estefano
Estefano attends school, where they give him his therapies and little by little, he makes progress. I’m very happy that he realizes who I am.
Estefano attends school, where they give him his therapies and little by little, he makes progress. I’m very happy that he realizes who I am.
Cosimo Alessandro is a beautiful little boy with GRIN1 who lives in San Donaci, a small town in the province of Brindisi, Italy, with his family.
Lyana is surrounded by love. Our daughter will be our lifelong fight and we know she will surprise us. It’s been 3 months that she has not had any crises. Lyana is victorius!
Madison is an extraordinary 11-year-old girl with a radiant smile and an unstoppable spirit. She has a heart full of courage, and her laughter brings warmth to everyone around her.
Princess Aurora can’t talk, walk, crawl, hold her head up or eat. But what we have found in her is an amazing and delightful personality.
Growing up, I always wanted to advocate for those in need and to fight for what was right. Never in a million years would I have thought that fight would
Amarli Broome lives in Australia with her Mum Jade, her Dad Lee and her two brothers Bohdi and Jordi. Amarli will celebrate her seventh birthday in April this year, and
Rowan is our 4 year old Bee. He is so happy, lovable, and just happy go lucky all the time. Never forgets a face.
The floor underneath our feet collapsed. We found out soon after that Ansel had a rare genetic mutation called Grin2b.
In 2022 I was diagnosed with GRIN2D. After I was diagnosed with GRIN2D, I was at least glad to know the root cause of my epilepsy.