Levi

Levi is an energetic, curious and friendly 11 year old recently diagnosed with GRIA1.

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Asa

Even though Asa has three diagnoses, he absolutely does NOT let anything slow him down

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Samantha

Samantha loves to swim, to listen to music and to try all kinds of foods. She’s affectionate and capable of love and she gets a mischievous smile when she is trying to sneak a snack when you are looking elsewhere.

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Victoria

My daughter, Victoria, was born on 10/28/2018 as a healthy girl. There was an episode of fainting in the first month of her life. At that point, we had no diagnosis.

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