
Jordyn
In 2022 I was diagnosed with GRIN2D. After I was diagnosed with GRIN2D, I was at least glad to know the root cause of my epilepsy.

In 2022 I was diagnosed with GRIN2D. After I was diagnosed with GRIN2D, I was at least glad to know the root cause of my epilepsy.

We were told Wyatt would not live to see his 1st birthday. He is now 4 years old and still fighting!

Meet AJ! All of AJs paperwork and report cards say the same thing, “AJ is such pleasant person, what a sunny personality”.

Our only and beloved son, Bata, is 9 years old. While expecting him we imagined what he would be like, and could not wait for him to change our lives for the better. But when he was born, our lives did change.

This is not the life we expected for Coco or our family, however our love for her is infinite and the joy and happiness she brings to our family is immeasurable. Our lives have become much more intentional now and focused on Coco living her very best life.


Skylea was born on Feb 24, 2017. Things seemed normal until she was 3 months old.


Jude was born February 13, 2018. While Jude was born seemingly healthy, within the first few weeks he started having issues with his feeding, which led to his first stay at Seattle Children’s Hospital.