Remembering Arthur

To this day, I remember the first moment I saw my son Arthur right after his birth, which, I canguarantee, was the happiest day of my life. In the first

Read More »

CureGRIN Holiday Gift Guide

The holidays are the perfect opportunity to show your appreciation for loved ones with gifts that come from the heart. Whatever holiday you celebrate, we are here to provide you with the perfect CureGRIN inspired gifts that keep on giving…to the recipient and to our kids!

Read More »

A Family’s Guide to the Combined Brain Biorepository

As the mother of a young daughter with a rare genetic disorder, I’m constantly looking for ways to contribute to research. My family and I recently participated in the Combined Brain Biorepository—a research program dedicated to collecting biological samples for future studies. If you’re a family considering this, I want to share our experience to help you know what to expect.

Read More »

Cure in Progress Report: August 2025

Welcome to the inaugural edition of our Cure in Progress Report! As the Executive Director of CureGRIN Foundation, I’m thrilled to launch this new way of connecting with you. My goal with this report is to provide you with transparent, hopeful, and regular updates on the progress being made towards treatments and cures for GRI Disorders.

Read More »

Cure in Progress Report: June 2025

Welcome to the inaugural edition of our Cure in Progress Report! As the Executive Director of CureGRIN Foundation, I’m thrilled to launch this new way of connecting with you. My goal with this report is to provide you with transparent, hopeful, and regular updates on the progress being made towards treatments and cures for GRI Disorders.

Read More »

Accessing GRI gene models

Are you a researcher interested in accessing GRI gene animal models, patient variant animalmodels, patient-derived induced pluripotent stem cells, and/or patient samples? Check out thelinks below!

Read More »