Hayden is 3 years old and was recently diagnosed with a rare Xq25 duplication involving the GRIA3 gene. This diagnosis helped me put the pieces together for things I had noticed since he was little like his speech delays, sensory differences, and sleep struggles.
As a mom, finally having an answer has brought me peace and clarity. Instead of questioning myself, I now see that Hayden’s unique challenges are part of who he is, and they don’t take away from the incredible, curious, and joyful little boy he is. The diagnosis has helped me better support him and celebrate all of his strengths.
Hayden’s journey will have its ups and downs, but every day he amazes me with his personality, determination, and love. By sharing his story, I hope other parents will feel encouraged and know they are not alone.
