Jehu is a loving boy who loves kisses and lots of sounds! Most of time, he is a happy boy, but there are days when he cries nonstop.

Jehu is diagnosed with GRIN2B, Loss of Function. His dad and I were both tested and he did not inherit this disorder from either of us. Our lives were turned upside down as we had to learn how to take care of Jehu and accept him just as he is. He is fully disabled, non- verbal and depends on his g-tube for feeding with special formula that we received from hospital.

One of his most favorite things to do is roll. He is very energetic! Every mile stone takes a long time for him to learn, for example, clapping his two hands. He was able to learn how to do it when he turned 4 years old last year.

Because of Jehu’s needs, I have to stay home to take care of him while his dad works.

We love Jehu very, vey much. We encourage other parents that when you find out about your child’s rare genetic mutation, be strong. If you feel like you need to cry then do that. Take one day at a time. Give your child all of your love love. We are blessed  be their parents. I believe that God trusted us all to take care of them with unconditional love.

Yes, some days are good and other days we rush to hospital. Some days we deal with vomit or colds, but all shall be well with God’s grace.

We are honored to share our story with the world! Keep being strong and keep going. We can do this!