NORD Membership

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We are excited to announce that CureGRIN is now an official Platinum member of

National Organization for Rare Disorders, Inc. (NORD)  

Being a part of NORD’s membership network is an honor and provides incredible opportunities for guidance, support, and education for patient organizations like us.

Be sure to check up the upcoming NORD virtual event: 2021 Living Rare, Living Stronger NORD Patient and Family Forum June 26 -27th at Living Rare Forum – NORD (National Organization for Rare Disorders) (rarediseases.org)

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Past Events

Bowling for GRI Disorders

Join one of our awesome GRI Families and Bowl for GRI Disorders at Lane Glo Bowl South in New Port Richey, FL!

News

GRI Genes Roundtable – Dec 2021

We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 43 participants present for the meeting.

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