2024 GRI Virtual Conference
Share This Post
Join us for #GRICON2024 Virtually
GRI Conference 2024 brings together GRI families, researchers, clinicians and industry representatives from around the world to learn, collaborate and network.
Who should attend?
- Families. Learn from leading researchers doctors and scientists.
- Researchers and clinicians. Learn from your peers in the advanced track. Connect with new collaboration partners in universities, hospitals and biotech.
- Industry. Learn about GRI Disorder and the unmet need for pharmaceuticals and genetic medicines.
Registration for GRIcon2024 is Pay What You Can
Our suggested ticket price is $79 per person / household, but we don’t want anyone to miss out because of cost. Whatever your connection to GRI Disorder, feel free to register for free or “Pay What You Can” a lower amount. And if you have the means to pay more, we appreciate that too!
8:30 – 9:30am ET: GRI Community Networking Event
Hosted by Lauren Williams, CureGRIN Foundation and Presented by GRIN Therapeutics
9:30am- 10:00am
Welcome and Update on the Search for Treatments and Cures
Keith McArthur, CureGRIN Foundation
10:00am- 11:00am
GRISpeaks: GRI families share their experiences
Patty Sanders (GRIA3), Kristina McKean (GRIN1), Laura Williams (GRIN1)
Moderated by Denise Rehner, CureGRIN Foundation
11:00am- 11:05am- Break
11:05am- 12:05pm- Breakout Session 1
Presented by GRIN Therapeutics
Neurostorms: Autonomic Dysfunction and Paroxysmal Sympathetic Hyperactivity
Dr. Keith Coffman, Children’s Mercy Hospital, Kansas City, Missouri
Moderated by Keith McArthur, CureGRIN Foundation
Research Talks: Brain Donation and Mortality Study
Dr. Carolyn Komich Hare, Autism BrainNet’s Clinical Director, Simons Foundation
Meagan Hutchinson, Research Coordinator, CureGRIN Foundation
12:05pm-12:10pm- Break
12:10pm- 1:10pm- Breakout Session 2
GRI Animal Models and Gene Therapy
Dr. Amy Ramsey, University of Toronto and Dr. Wayne Frankel, Columbia University
GRI Medicine Cabinet and Therapies
Dr. Lisa Belderes, and Dr. Kristen Park, MD Children’s Hospital Colorado
1:10pm-1:15pm- Break
1:15pm- 2:15pm- Breakout Session 3
Insights from GRI Clinical Trials
Dr. Michael Panzara , Chief Medical Officer, Neurvati Neuroscience (GRIN Therapeutics) and Dr. Ángeles García-Cazorla, Children’s Hospital in Barcelona.
Family Talks: Advocacy and Fundraising
Dr. Danielle Boyce, Tufts University Biomedical Health Data Science Collaborative (BHDSC) and Johns Hopkins University School of Medicine Faculty
2:15pm- 2:20pm- Break
2:20pm- 3:20pm- Keynote 2 Registries and GRI disorder phenotypes
Presented by GRIN Therapeutics
Dr. Tim Benke,Children’s Hospital of Colorado, Dr. Wendy Chung,Chief of Pediatrics at Boston Children’s Hospital and Dr. Allan Bayat, Filadelfia Epilepsy Hospital in Denmark
Moderated by Meagan Hutchinson, CureGRIN Foundation
3:20pm-3:25pm-Break
3:25pm- 4:50pm- Keynote 3
Research Update on CureGRIN-funded Projects
Dr. Dennis Lal, UTHealth Houston, Dr. Steve Traynelis, CFERV at Emory University, Dr. Wayne Frankel, Columbia University, Dr. Tristan Sands, Columbia University, Dr. Amy Ramsey, University of Toronto, Dr. Maggie Kalev, University of Auckland , Dr. Derek Bowie, McGill University and Dr. Ian Coombs, University College London
Moderated by Meagan Hutchinson, CureGRIN Foundation
4:50pm- 5:45pm- Ask Me Anything, Awards and Closing Remarks
Dr. Amy Ramsey, University of Toronto, Dr. Johannes Lemke, University of Leipzig, Germany, Dr. Ian Coombs, University College London, Dr. Keith Coffman, Children’s Mercy Hospital, Kansas City, Missouri
Questions? Contact Lauren Williams, Family Engagement Manager at lauren@curegrin.org
Sponsorship opportunities please contact Denise, President at denise@curegrin.org
Event Planning Committee
Keith McArthur – CEO and Head of Science
Denise Rehner – President
Meagan Collins – Research Manager
Lauren Williams – Family Engagement Manager
Brittany Brown – CureGRIN Coordinator
Thank you to our Platinum Sponsor!
Read more Posts
Get Moving for GRI 2024
We are excited to kickoff our 5th annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorder.
Raising Rare Superheroes: GRI Community Chat
Whether this is a new diagnosis or you have been navigating this disorder for many years, you can find support and valuable information at our gatherings.
