Submit Your Story

Share your GRI loved one’s story

GRI Disorder stories help us raise awareness and advocate for funding and research. They also help newly diagnosed families feel less alone in the world of rare diseases. Please consider sharing your story and making a difference in the lives of families affected by GRI Disorder. Pictures and videos, even without telling your story, are immensely helpful to accomplishing our mission of raising awareness, funding research and supporting families.

To submit your story, photos or video clips for use on our website, brochures, social media, and/or other promotional materials, please email Lauren at lauren@curegrin.org