News
Blog posts on current GRI Disorders news and events
Get Moving for GRI 2024
We are excited to kickoff our 5th annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorder.
L-Serine Trial Update
A recently published clinical trial found that a new treatment, L-serine, appeared to have some positive effects in a small group of children with GRIN Disorder.
2024 GRI Virtual Conference
Join others from around the world at the 2024 GRI Virtual Conference. Learn more about what’s happening in GRIN research and hear the latest developments from clinicians, researchers, and family members.
How 2023 brought us closer to treatments and cures
Since our founding in 2019, CureGRIN has been working tirelessly alongside researchers, clinicians and industry to accelerate the path to treatments and cures. There are many promising compounds and genetic treatments, but there are barriers in getting those to clinical trial. Adding ICD-10 codes for these nine genes would remove a significant barrier to clinical trials, by helping us to better understand where our patients are located.
Rare Disease Day
Join us and #lightupforrare on Rare Disease Day, February 29! Light up in solidarity with over 300 million people living with a rare condition and share our colors.
CureGRIN’s Letter to the CDC Regarding ICD-10 Codes for GRI Disorders
Since our founding in 2019, CureGRIN has been working tirelessly alongside researchers, clinicians and industry to accelerate the path to treatments and cures. There are many promising compounds and genetic treatments, but there are barriers in getting those to clinical trial. Adding ICD-10 codes for these nine genes would remove a significant barrier to clinical trials, by helping us to better understand where our patients are located.
Get Moving for GRI 2023
We are excited to kickoff our 4th annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorder.
CureGRIN honors award winners at #GRIcon2023 Gala
At the 2023 GRI conference in Boston, MA, the CureGRIN Foundation recognized 17 amazing people/organizations with our first-ever GRI Patient Impact Awards
CureGRIN awards $652,500 in Research Grants
CureGRIN Foundation is excited to announce that we are funding five research projects for a total investment of $652,500. The announcement was made by CureGRIN CEO Keith McArthur last week at GRI Conference 2023 (GRICON).
Let’s Talk About Money
Today, I want to be transparent with you about how much money we have to spend on treatments and cures, how far that will take us, and exactly why we need your help to go further.
Count Me In 2022
CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.
2022 GRI Conference
GRI Conference brings together GRI families, researchers and clinicians, and industry representatives from around the world to educate, collaborate and network for treatments and cures for GRI Disorders.
2023 GRI Conference
GRI Conference brings together GRI families, researchers and clinicians, and industry representatives from around the world to educate, collaborate and network for treatments and cures for GRI Disorders.
Scientists: We want to fund your research towards treatments and cures
CureGRIN is now accepting applications for research funding that will help advance and accelerate our search for treatments and cures for GRI Disorder (GRIN, GRIA, GRIK and GRID).
Raising Rare Superheroes: GRI Community Chat
Whether this is a new diagnosis or you have been navigating this disorder for many years, you can find support and valuable information at our gatherings.
GRIN researchers receive nearly $3 million in research grants to study clinical and functional consequences of variants and gene therapy
Meet the GRIN Researchers Series
Serve as Treasurer on the CureGRIN Board
Do you know our next Treasurer? CureGRIN Foundation is looking for a Treasurer located in the United States to join our Voluntary Board of Directors. This person does not need to be a family member of someone with GRI Disorder but they must be committed to our mission. If you know anyone with finance or accounting experience interested in serving the global GRI community, please nominate them by providing their contact information to heather@curegrin.org by May 3, 2022.
Get Moving for GRI 2022 VIRTUAL Event
We are excited to kickoff our 3rd annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorder.
Communications Coordinator
We’re excited to announce that CureGRIN is hiring a Communications Coordinator to help us expand awareness for GRI Disorder!
How fast can we get to treatments and cures?
The more work we get done through this first round, the faster we’ll get to better treatments and cures.
GRI University Part 1, GRI Genetics March 12
Educational primer for the April 2022 virtual GRI Conference
GRI University Part 2, GRI Biology and Functional Analysis March 26
Educational primer for the April 2022 virtual GRI Conference
CureGRIN to Invest Millions in Research Towards Treatments and Cures
Investments will be focused on answering the 10 “essential questions” that were identified in consultation with families, researchers and clinicians.
Serve on the CureGRIN Board
Would you like to join us on our mission to improve the lives of people living with GRIN, GRIA and GRIK Disorder? If you are a Parent, Grandparent, Sibling, or Caregiver of a person with GRIN, GRIA or GRIK Disorder please consider applying for the CureGRIN Board of Directors.
GRI University Part 3, GRI Treatments and Path to a Cure April 9
Educational primer for the April 2022 virtual GRI Conference
GRI Genes Roundtable – Dec 2021
We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 43 participants present for the meeting.
GRI Genes Roundtable – Oct 2021
We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 43 participants present for the meeting.
Roche Lab-Postdoctoral Position
Postdoctoral position at the National Institute of Neurological Disorders and Stroke
Grand Prize for Count Me In 2021
One lucky GRI family will win a suite at next year’s GRI Conference in Boston.
GRI Genes Roundtable – Sept 2021
We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 43 participants present for the meeting.
Count Me In 2021
CureGRIN is looking for GRI Families to help us raise $250,000 to fund research for a cure for GRI Disorder.
GRI Connect
Introducing GRIConnect: Learn and network with GRI families, GRI researchers and GRI clinicians around the globe!
Introducing GRIN Therapeutics
We recently announced plans to initiate the first clinical study on Radiprodil. Meet the GRIN Therapeutics team here.
GRIN Sibling: Sierra
Sierra Wasielewski, Sister to Austin, shares her experience on being a sibling to her brother with GRIN Disorder.
GRI Genes Roundtable – Jul 2021
We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 50 participants present for the meeting.
GRIN Sibling: Abby
Abby Pellitteri, Twin Sister to Owen, shares her experience on being a sibling to her brother with GRIN Disorder.
Meet CureGRIN’s Newest Board Member – Heather
Meet CureGRIN’s newest board member, Heather Cartwright.
2021 GRIN Virtual Conference
Join others from around the world at the GRIN Virtual Conference. Learn more about what’s happening in GRIN research and hear the latest developments from clinicians, researchers, and family members.
GRIN Genes Roundtable – Apr 2021
We brought together researchers and clinicians studying GRIN Disorder, GRIN genes, NMDA receptors, and other ionotropic receptors to discuss and exchange ideas on identifying GRIN research priorities. There were 31 participants present for the meeting.
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CureGRIN Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to CureGRIN are tax-deductible. Fund research. Save a life.
