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We are excited to announce that one of our awesome GRI Families will be working with Lane Glo Bowl South on a Fundraiser for the Cure GRIN Foundation.

As you may know, Aurora has a very rare genetic disorder called GRIN2A. Many GRI Patients are nonverbal, unable to walk and often suffer severe and frequent seizures that are not responsive to medical therapies. The foundation raises money for critical research, as none of the GRI disorders have a cure.

And if you can’t make it to the event, you can donate!

Sign up now for a fun night of cosmic bowling, raffles and fun. All proceeds will go to the CUREGrin Foundation. I think maybe a certain Princess Aurora will make an appearance as well!

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Let’s Talk About Money

Today, I want to be transparent with you about how much money we have to spend on treatments and cures, how far that will take us, and exactly why we need your help to go further.

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