CureGRIN is proud to be a media partner for RAREfest20, a full day Cambridge Rare Disease Network festival featuring interactive exhibits showcasing cool science, visionary technology, and pioneering organizations improving lives and bringing hope to those affected by rare diseases. 

In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, showcase science, inspire innovation and give a voice to rare disease patients and their families.

Held on November 28th, RAREfest20 is the world’s only rare disease inspired festival attracting a global audience.

This is the virtual place to be to learn about ground-breaking science, revolutionary technology and to hear from the rare disease community.

From the comfort of their sofa, festival-goers can listen to expert talks, browse the poster and film gallery, interact with demos and experiments, hear powerful patient stories and take part in Q&A, meet the experts and networking.

Speaker highlights include:

Onno Faber – Rare disease patient, tech guru, entrepreneur and TEDx speaker. Founder of All Stripes, helping rare disease communities unlock important research data.

Giles Yeo – Dr Giles Yeo, at the forefront of research that showed when a number of
genes mutated, severe obesity was the result. He’ll be talking genetics, obesity and why
research into rare conditions is a universal pathway to understanding more common
diseases.

Illumina and Same but Different – ‘Illumina’ is a world leader in next-generation sequencing. ‘Same but Different’ uses the arts for positive social change. Together they will present ‘The Journey of Hope: Exploring the diagnostic odyssey’.

Cookies4Cures – US based mum and daughter team bake cookies to help fund research into rare paediatric diseases. Cookies baked: Almost 16,000. Money raised: Over $100,000!

For more information visit the festival website. Tickets are FREE and available through the platform.