GRIN Disorder Awareness Month

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Join us for GRIN Disorder Awareness Month in March

Join us for our 2nd annual GRIN Disorder Month as we share facts about GRIN Disorder and inspiring and moving stories about GRIN families around the world. We kickoff the event on Rare Disease day on February 28th. GRIN Disorder is one of approximately 7,000 Rare Diseases.

GRIN Disorder is part of a larger family of genetic diseases related to ionotropic glutamate receptors. These receptors play an important role in learning and memory as well as other critical biological functions. People with GRIN Disorder have mutations in one of four genes: GRIN1, GRIN2A, GRIN2B and GRIN2D.

Each week we focus on one of these four GRIN genes and share stories from the GRIN Community.

We will celebrate those GRIN Angels lost way too young on March 14th GRIN Angel Remembrance Day.

This year we will expand and introduce you to families living with GRIA Disorder, also part of a larger family of genetic diseases related to ionotropic glutamate receptors. CureGRIN and its network of researchers are working with closely with families affected by these disorders to identify insights that could benefit all. 

We invite to follow us on our social media platforms and share our posts with your friends and families to help spread awareness of GRIN Disorder.

Be sure to order your CureGRIN gear to show your support.

Order your copy of Stories of GRIN. Written by parents, grandparents and even a team of GRIN researchers, “Stories of GRIN” reflects a shared journey of pain, love, joy, resilience, and hope.

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GRI Genes Roundtable – Jul 2021

We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 50 participants present for the meeting.

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Question 7

Essential Question 7 in the Roadmap for a Cure.

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