GRI Conference Agenda
March 23-26, 2023 in Boston, MA USA
| Thursday, March 23: GRI University (Families Only) |
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Time | Event | Location |
|---|---|---|
1:00pm - 2:40pm | Family Unconference Families set the agenda and break out into sessions to learn from others. Presenters: Keith McArthur, Denise Rehner, Lauren Williams | Skyline A & B |
2:40pm - 3:00pm | Refreshment Break | |
3:00pm - 4:55pm | GRI University Families learn the basics of genetics and neuroscience with a focus on GRI genes and the receptors they encode. Families set the agenda and break out into sessions to learn from each others. Presenters: Meagan Collins, Dr. Amy Ramsey, Dr. Tim Benke | Skyline A & B |
4:55pm - 5:00pm | Conclusion/Daily Wrap up - Lauren Williams | Skyline A & B |
5:00pm - 7:00pm | Scavenger Hunt & Family Meetup |
| Friday, March 24: GRI Conference (All Attendees) |
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Time | Event | Location |
|---|---|---|
8:00am - 9:00am | Breakfast | Grand Ballroom A |
9:00am - 9:30am | Welcome and Overview Where are we on the journey towards treatments and cures for GRI Disorder? Speakers: Keith McArthur (CureGRIN) and Dr. Ann Poduri (Boston Children's Hospital) | Grand Ballroom B |
9:30am - 10:45am | Keynote 1: GRI Speaks Hear directly from GRI Patients and their families. Speakers: Dr. Ann Poduri (moderator), Milan Atanassov (GRI Patient), Ipsita Atanassov (GRI Parent), Matt Smith (GRIA2 patient and parent) | Grand Ballroom B |
10:45am - 11:15am | Refreshment Break | |
11:15am - 12:30pm | Keynote 2: Using Gene Therapy to cure GRI Disorder in mice Researchers at the forefront of using gene therapy to cure GRI Disorders share their preliminary results. Speakers: Dr. Amy Ramsey (University of Toronto) and Dr. Wayne Frankel (Columbia University) | Grand Ballroom B |
12:30pm - 12:50pm | Group Photo | Grand Ballroom B Stage |
12:50pm - 2:00pm | Lunch | Grand Ballroom A |
Breakout Sessions
Time | Event | Expert | Intermediate | Basic |
|---|---|---|---|---|
2:00pm - 3:00pm | Breakout Session 1 | Researcher Talks: Scientific Presentations on the latest GRI-related research developments. Details coming soon! Speakers: Dr. Lonnie Wollmuth and Dr. Derek Bowie Location: Skyline A | GRIA and Predictive Modeling Speakers: Dr. Dennis Lal (Cleveland Clinic), Dr. Ian Coombs (University College London) Location: Grand Ballroom B | GRI Centers of Excellence Learn about the GRI Center of Excellence in the Netherlands and the soon-to-be launched center in Colorado. Speakers: Liz Marfia Ash (GRIN2B Foundation) moderator, Dr. Kristen Park, Dr. Danielle Veema Location: Skyline C |
3:00pm - 3:45pm | Break | Speed Networking Event Dr. Ann Poduri Dr. Jennifer Bain Dr. Geoff Swanson Dr. Katherine Roche Dr. Moran Rubenstein Dr. Graham Collingridge Dr. Maggie Kalev Dr. Ian Coombs Location: Grand Ballroom A | ||
3:45pm - 5:00pm | Breakout Session 2 | Poster Presentations: Shorter scientific presentations on GRI research. Details coming soon! Location: Skyline C | Ask Me Anything Panel Patient families: This is your chance to ask all of your GRI questions to our panel of expert researchers and clinicians. *Meagan Collins (moderator) *Dr. Tim Benke *Dr. Amy Ramsey *Dr. Ann Poduri *Dr. Steve Traynelis Location: Grand Ballroom B | |
5:00pm - 5:05pm | Conclusion/Daily Wrap Up- Lauren Williams Location: Grand Ballroom B |
GRI Awards Gala
Time | Event | Location |
|---|---|---|
5:00pm - 6:30pm | Happy Hour! Grab a cocktail and check out the poster presentations or visit with exhibitors during this pre-gala happy hour. Cash Bar. Open to all registrants. Come enjoy our photo booth! | Ballroom Pre-Function Skyline C for Posters |
6:30pm - 9:30pm | CureGRIN Patient Impact Awards Gala Join us for a night of food and fun as we recognize the patients, families, researchers, clinicians, and donors who have made the biggest impact in our efforts to find treatments and cures for GRIA, GRIK and GRIN Disorder. | Grand Ballroom A |
| Saturday, March 25: GRI Conference (All Attendees) |
|---|
Time | Event | Location |
|---|---|---|
6:00am - 7:00am | Yoga for a Cause | Skyline E |
8:00am - 9:00am | Breakfast | |
9:00am - 9:15am | Welcome Back Keith McArthur | Grand Ballroom B |
9:15am - 10:30am | Keynote 3: The Path to Drug Approval What does it take to get to treatments and cures for GRIA, GRIK and GRIN Disorder? Speakers: Dr. Michael Tranfaglia (FRAXA), Dr. Michael Panzara (GRIN Therapeutics), Michelle Campbell (US Food and Drug Administration -FDA) | Grand Ballroom B |
10:30am - 11:00am | Refreshment Break | |
11:00am - 12:00pm | Keynote 4: Storms vs. Seizures What is Paroxysmal Sympathetic Hyperactivity and why has it been so overlooked as a symptom of genetic neurological disease? Speaker: Dr. Keith Coffman (Children's Mercy Hospital) | Grand Ballroom B |
12:00pm - 1:15pm | Lunch | |
12:00pm - 1:00pm | Speed Networking Event Dr. Danielle Veema Dr. Kristen Park Dr. Amy Ramsey Dr. Lonnie Wollmuth Dr. Derek Bowie Dr. Tim Benke Dr. Steve Traynelis Dr. Wayne Frankel | Skyline B |
Breakout Sessions
Time | Event | Expert | Intermediate | Basic |
|---|---|---|---|---|
1:15pm - 2:15pm | Breakout Session 3 | Research Talks: Scientific presentations on the latest GRI-related research developments. Details coming soon! Speakers: Dr. Moran Rubinstein and Dr. Katherine Roche Location: Skyline A | GRIK Disorder Panel Learn about GRIK Disorder. Details and panelists/speakers coming soon! Speaker: Dr. Geoff Swanson, Danielle Butler (GRIK2 parent) Location: Skyline C | Dr. Keith Coffman Q&A Families and Physicians: Join keynote speaker, Dr. Keith Coffman, in a smaller group to ask questions about paroxysmal sympathetic hyperactivity and other movement disorders. Location: Grand Ballroom B |
2:15pm - 2:30pm | Short Break | |||
2:30pm - 3:30pm | Breakout Session 4 | Research Talks: Scientific presentations on the latest GRI-related research developments. Details coming soon! Speakers: Dr. Graham Collingridge and Dr. Steve Traynelis Location: Skyline A | GRI Disorder & Life Expectancy What do we know? We don't usually think about GRI Disorders as fatal diseases, but more than a dozen patients have died of GRI-related complications. A tough conversation on what we know about GRI's impact on life expectancy. Speakers: Meagan Collins (moderator), Samantha Jiminez (GRI Angel Parent), Stephanie Brock Location: Skyline C | CureGRIN Annual Report Speakers: Heather Cartwright (CureGRIN Board Chair), Keith McArthur (CureGRIN CEO), and Denise Rehner (CureGRIN President) Location: Grand Ballroom B |
3:30pm - 4:00pm | Break and Refreshments | |||
4:00pm - 5:00pm | Breakout Session 5 | The GRI Phenotype How do symptoms vary across genes and variants? Speakers coming soon! Speakers: Dr. Tim Benke, Dr. Jennifer Bain, Dr. Geoff Swanson, Dr. Alan Bayat Location: Grand Ballroom B | How do we pay for treatments and cures for GRI Disorders? We all want treatments and cures for our GRI kids. How soon we get there depends on all of us. Listen to how ordinary GRI families have raised the funds that are driving the research to make this dream a reality. GRI families share their tips and tricks and what has been most successful in their fundraising efforts in this panel discussion. Speakers: Heather Cartwright, Kaitlyne Leblanc, Lauren Williams, Berni Pippet-Mullen, Stephani Mariani Location: Skyline C | |
5:00pm - 5:10pm | Conclusion/Daily Wrap up Keith McArthur Location: Grand Ballroom B |
