Raising Rare Superheroes: GRI Community Chat

Raising Rare Superheroes: GRI Disorder Parent Circle

CureGRIN hosts a GRI community chat monthly for patients, caregivers, friends and family members of people with GRI Disorder to virtually connect with other GRI families globally.

At our monthly GRI Community Chat, you’ll find a safe space to connect with people who understand what you’re going through. Our virtual gatherings are relaxed spaces for community members to get to know each other and share resources.

• Join calls as often as you want
• Leave your camera off if it makes you feel more comfortable
• Hang back and just listen

You’re not in this alone.

Whether this is a new diagnosis or you have been navigating this disorder for many years, you can find support and valuable information at our gatherings.

Date Time
January 19
5:30p EST | 11:30p BST
February 17
12p EST | 5p GMT
March 20
5p EDT | 9p GMT
April 20
12p EDT | 5p BST
May 22
5p EDT | 10p BST
June 22
12p EDT | 5p BST
July 24
5p EDT | 10p BST
August 21
12p EDT | 5p BST
September 25
5p EDT | 10p BST
October 23
12p EDT | 5p BST
5p EST | 10p GMT
December 11
12p EST | 5p GMT

Read more Posts

Events

Count Me In 2024

CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.

Events

GRICON25

GRICON25 brings together GRI families, researchers and clinicians, and industry representatives from around the world to educate, collaborate and network for treatments and cures for GRI Disorders.

Skip to content