Kason

He was living his best life…. Until the very next week on August 22nd, 2022, when we tried waking him up for school, our precious boy was gone.

Sofia Vera Phan

Sofia Vera, 7lb 11oz,  was born full-term in September of 2015.

Caroline

My name is Beth Brownell and this is my daughter, Caroline. She has the GRIN2A mutation.

Skylea

Skylea was born on Feb 24, 2017. Things seemed normal until she was 3 months old.

Maya

Maya was born a little bit premature at 37 weeks. We only started to realize that there was something off at around 6 months.

Austin

On May 6, 2003, we were blessed with our son, Austin. At first, Austin appeared to be a healthy, strong boy.

Kendall

Seeing her smile brings joy to our hearts and we hope that someday there will be a cure for her GRIN Disorder.

Holly

Holly surprises us all the time. She is still very delayed with cognitive function about that of a toddler and speech less than that, but she is always progressing, always learning and always delighting us with her wonderful sense of humour.

Greyson

Greyson is a charming, funny and hard working 10 year old. He loves YouTube, video games, swimming and being with his family and friends.

Jude

Jude was born February 13, 2018. While Jude was born seemingly healthy, within the first few weeks he started having issues with his feeding, which led to his first stay at Seattle Children’s Hospital.