Ezra
Ezra came into the world on September 17th, 2018, surrounded by his parents and family who were all so excited to meet him!
COVID-19 and GRIN Research
Share This Post Share on facebook Share on linkedin Share on twitter Share on email How is COVID-19 Impacting GRIN Disorder Research? Our lives have changed in countless ways because of COVID-19 and social distancing requirements. These regulations have also taken a toll on GRIN Disorder Research. Around the world, labs that aren’t focused […]
Grace
Through all that she was unable to do, she was full of life and happiness. And Grace could do things, she just had to work harder than others. And she did.
Ethan B
Years and many, many tests after our search for answers began, Ethan was diagnosed with a GRIN2A mutation in January of 2018 at the age of 13.
Stay Home 4 GRIN
We want to hear your story about how you are taking care of and protecting your loved one with GRIN Disorder.
Unlocking Bryson’s Brain
This eight-part series tells the story of Bryson, GRIN Disorder, and Keith’s family’s search for a cure.
Three Things You Should Know About Our Kids with GRIN Disorder
Share This Post Share on facebook Share on linkedin Share on twitter Share on email Many individuals with GRIN Disorder are non-verbal or have limited communication abilities. Some use devices and switches to communicate and often, us parents, have become so in-tune with our kids that we can read their non-verbal cues such as facial […]
Lessons Our Family Members with GRIN Disorder Teach Us
Share This Post Share on facebook Share on linkedin Share on twitter Share on email Many parents agree that having a child with GRIN Disorder has taught them valuable life lessons. When asked how having a family member with GRIN Disorder has changed us, the evidence points to our kids teaching us to be better […]
GRIN Genetics 101: Understanding Your Kid’s Whole Exome Sequencing Report (WES)
Share This Post Share on facebook Share on linkedin Share on twitter Share on email https://youtu.be/2Fd8LqjxDN0 When we become parents of rare disease kids, we’re expected to become everything from physiotherapist to pharmacist overnight. This post is a primer to help you embrace your inner geneticist. It’s based on what I learned when I was […]
Fears for Our Kids with GRIN Disorder
Share This Post Share on facebook Share on linkedin Share on twitter Share on email We asked family members on the CureGRIN Facebook page to tell us about their fears for their loved ones with GRIN Disorder. By far, the biggest fear we have as parents of a child with GRIN Disorder is who will care […]
