Understanding NMDA Receptors: A Guide for GRIN Disorder Families
Share This Post Share on facebook Share on linkedin Share on twitter Share on email By: Meagan Collins You’ve probably heard that GRIN genes contain the DNA code to build NMDA receptors (NMDARs), but what is the NMDA receptor and why is it so important? NMDARs play a critical role in learning and memory, which […]
Hopes and Dreams for our Kids with GRIN Disorder
Share This Post Share on facebook Share on linkedin Share on twitter Share on email We asked family members on the CureGRIN Facebook page to tell us about their hopes for their loved ones with GRIN Disorder. It turns out our hopes aren’t all that different from those of parents of typically developing children – […]
The Making of a GRI Disorder Fundraiser
Share This Post Share on facebook Share on linkedin Share on twitter Share on email A mother’s journey in sharing her story with strangers By: Natasha Lesmana, Mother of Aiden (GRIN1) I recently watched the movie Hustler with Jennifer Lopez and she said a line in the movie that really spoke to me, “motherhood […]
CureGRIN Hires Research Coordinator
Meagan will help us to build a global research network of researchers, physicians and biotech companies working together to find a cure.
CureGRIN Awarded $450,000 Grant from Chan Zuckerberg Initiative
Share This Post Share on facebook Share on linkedin Share on twitter Share on email We are so excited to announce that CureGRIN has received a $450,000 grant from the Chan Zuckerberg Initiative (CZI) Rare As One Project to build a global research network. This is great news for the entire GRIN Disorder community, as […]
Huge Grant for GRIN Disorder Research
Share This Post Share on facebook Share on linkedin Share on twitter Share on email Researchers in Canada have been awarded a C$868,275 government grant (approximately US $650,000) to investigate treatments for GRIN Disorders. Dr. Amy Ramsey, a member of CureGRIN’s Scientific Advisory Board, is the principal investigator on the five-year grant, which will explore […]
Stronger Together: Austin’s Purpose Is Joining CureGRIN
Share This Post Share on facebook Share on linkedin Share on twitter Share on email Big news! We are thrilled to share that Austin’s Purpose, the first charity to raise funds for GRIN Disorders, will join forces with us and become part of CureGRIN. Austin’s Purpose was founded in 2015 to raise funds for research […]
We’re hiring! Are You Our First Research Coordinator?
Share This Post Share on facebook Share on linkedin Share on twitter Share on email We’re excited to announce that CureGRIN is hiring a research coordinator to help us build out a global research network! While the ideal candidate will have a science background, we will also consider parents / family members of people […]
Are All GRIN Disorders the Same?
Share This Post Share on facebook Share on linkedin Share on twitter Share on email By Keith McArthur When we first got a diagnosis for our son Bryson in 2015, my wife Laura and I immediately sought out other GRIN1 families. We learned his rare disease didn’t have a name, so we referred to it […]
One Minute to Cure GRIN Disorders
Share This Post Share on facebook Share on linkedin Share on twitter Share on email What if one minute of your time could help cure GRIN Disorders? Well, today it can. GRIN mom Berni has written a beautiful and powerful story about her son Tristan, who turns 24 next Friday. The more votes Tristan’s story gets, the greater […]
