jvargas, Author at CureGRIN Foundation

We’re living on a prayer that you will help us reach our goal!

Share This Post Share on facebook Share on linkedin Share on twitter Share on email Last month I wrote to tell you about our $250,000 campaign to fund research into a cure for GRIN Disorder. We are recruiting 100 GRIN Champion families who will each try to raise $2,500 to fund research for a cure. We’ve signed […]

How I Became a GRIN Disorder Champion

Share This Post Share on facebook Share on linkedin Share on twitter Share on email Searching and Finding at the CFERV Conference on GRIN Variants Parents of children with rare diseases are the ultimate hunters of information. There should be an award given to these brave and dedicated parents. After having some time to process […]

Count Me GRIN

Researchers agree that a cure for GRIN Disorder is possible, but we need your help!

CureGRIN Launches $250,000 Campaign

Share This Post Share on facebook Share on linkedin Share on twitter Share on email CureGRIN is looking for 100 GRIN Champions to help us raise $250,000 to fund research for a cure. Researchers Agree That A Cure for GRIN Disorders Is Possible, But We Need Your Help Finding a cure is expensive. This is why we […]

Parents and Researchers Collaborate to Find a Cure for GRIN Disorders

Share This Post Share on facebook Share on linkedin Share on twitter Share on email Parents of GRIN Disorder patients and researchers met at Emory University this past week for two days of sharing and collaboration at the 2019 CFERV Conference on GRIN Variants. This was the first Pan-GRIN Conference and it was profound for many reasons. The goal was to […]

August Newsletter: So much to learn about GRIN Disorders…

Share This Post Share on facebook Share on linkedin Share on twitter Share on email As parents of children with GRIN Disorders, we crave to learn as much as we can about this rare disease. Well, on September 13 and 14 there’s a huge opportunity to learn from some of the world’s leading researchers. They’ll […]

CureGRIN Foundation Submits Letter of Interest for Chan Zuckerberg Initiative

Share This Post Share on facebook Share on linkedin Share on twitter Share on email We are excited to announce, in collaboration with the GRIN2B Foundation, the submission of CureGRIN’s Letter of Intent for the Chan Zuckerberg Rare as One Initiative. The Chan Zuckerberg Initiative is a great opportunity for U.S.-based, patient-led rare disease 501(c)(3) […]

Rare Revolution Magazine Tuesday Takeover

Share This Post Share on facebook Share on linkedin Share on twitter Share on email Previous Next On Tuesday, July 2, 2019, Rare Revolution Magazine handed full-day access to their social media accounts over to CureGRIN to give a voice to those diagnosed with GRIN Disorders and the charities that support them. July 2, […]