Your Data Matters: Simons Searchlight Survey Deadline Approaching

As Simons Searchlight gears up for GRICON25 they’re eager to showcase YOUR family’s information in their data presentation summaries they’ll be sharing.

Accessing GRI gene models

Share This Post Are you a researcher interested in accessing GRI gene animal models, patient variant animalmodels, patient-derived induced pluripotent stem cells, and/or patient samples? Check out thelinks below! Animal models Simons Searchlight iPSCs COMBINEDBrain Sample Catalogue Read more Posts

Get Moving for GRI-25

We are excited to kickoff our 5th annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorder.

Success Reimagined: How My Child Changed My Perspective

She doesn’t care about the quality of her toys, the designer of her clothes, the car her parents drive, or the way she looks to others. She’s happy to be in the company of any human who gives her a smile. And that’s what success is all about. Being happy to be really alive.

Jehu

One of Jehu’s most favorite things to do is roll. He is very energetic!

Remembering Hayden

Grief caused by the loss of a child is always just under the surface of all our other emotions – even happiness.

Levi

Levi is an energetic, curious and friendly 11 year old recently diagnosed with GRIA1.

Leon

I have trouble with speaking—words don’t come out of my mouth easily. But I try my best! My mum patiently repeats everything for me, speaking loudly and clearly. Everyone keeps telling me that I’m amazing and that they love me so much. 

Kaidyn

She is Kaidyn. We don’t know what this life will be like, but we know we’re on this journey together.

Estefano

Estefano attends school, where they give him his therapies and little by little, he makes progress. I’m very happy that he realizes who I am.