Myles
Myles is an extremely hard working and determined little boy. He works so hard every week in therapy and wants nothing more than to move and do things on his own. We are so thankful for that.
Scientists: We want to fund your research towards treatments and cures
CureGRIN is now accepting applications for research funding that will help advance and accelerate our search for treatments and cures for GRI Disorder (GRIN, GRIA, GRIK and GRID).
Raising Rare Superheroes: GRI Community Chat
Whether this is a new diagnosis or you have been navigating this disorder for many years, you can find support and valuable information at our gatherings.
Serve as Treasurer on the CureGRIN Board
Do you know our next Treasurer? CureGRIN Foundation is looking for a Treasurer located in the United States to join our Voluntary Board of Directors. This person does not need to be a family member of someone with GRI Disorder but they must be committed to our mission. If you know anyone with finance or accounting experience interested in serving the global GRI community, please nominate them by providing their contact information to heather@curegrin.org by May 3, 2022.
Noah
Noah is now 9 1/2. There is a lot he can’t do, but so much more that he can do.
Clara
We gave Clara the middle name Hope because she had nothing but yet her smile was so bright and she was so full of hope.
Lucas
On January 31, 2022, we received the results of the last genetic tests carried out. Lucas was diagnosed with GRIN1.
Abby
Abby was born in December 2020 with two holes in her heart, called an ASD and a VSD (most likely not part of her GRIA2 disorder).
Ashleigh
Ashleigh has a very rare genetic disorder called GRIA2 related neuro development disorder. Ashleigh is 15 years old and her condition was first diagnosed in 2019.
Jaydan
Jaydan is amazing. She is a loving, caring, hilarious daughter, sister and friend. Jaydan is nine years old and is doing rather well now, considering her challenges, but her story didn’t start this way.
