Cosimo
Cosimo Alessandro is a beautiful little boy with GRIN1 who lives in San Donaci, a small town in the province of Brindisi, Italy, with his family.
Lyana
Lyana is surrounded by love. Our daughter will be our lifelong fight and we know she will surprise us. It’s been 3 months that she has not had any crises. Lyana is victorius!
Madison
Madison is an extraordinary 11-year-old girl with a radiant smile and an unstoppable spirit. She has a heart full of courage, and her laughter brings warmth to everyone around her.
Aurora
Princess Aurora can’t talk, walk, crawl, hold her head up or eat. But what we have found in her is an amazing and delightful personality.
Lucas
Lucas’s medical issues are very unpredictable and for many years we always said that with Lucas “expect the unexpected.” Lucas continues to write his own textbook.
Amarli
Amarli will celebrate her seventh birthday in April this year, and unfortunately has spent most of her young life in hospital due to her rare and complex medical condition.
Rowan
Rowan is our 4 year old Bee. He is so happy, lovable, and just happy go lucky all the time. Never forgets a face.
Ansel
The floor underneath our feet collapsed. We found out soon after that Ansel had a rare genetic mutation called Grin2b.
GRI Disorder Awareness Month – 2025
Join us for GRI Disorder Awareness Month in March.
Request for Proposals: Advancing Research for Treatments and Cures in GRI Disorders
CureGRIN is now accepting applications for research funding that will help advance and accelerate our search for treatments and cures for GRI Disorder (GRIN, GRIA, GRIK and GRID).
