2025 Holiday Gift Guide
Whatever holiday you celebrate, we are here to provide you with the perfect CureGRIN inspired gifts that keep on giving…to the recipient and to our kids!
🎉 It’s Here! Stories of GRI is Officially Released! 🎉
We are beyond thrilled to announce that Stories of GRI e-book and paperback are now available!
Unraveling GRIA1 neurodevelopmental disorders: Lessons learned from the p.(Ala636Thr) variant
One of the mysteries about GRI disorders is why some patients are far more affected than others. It was interesting to find out that even among 8 patients with the same exact variant, there was a wide difference in abilities.
Radiprodil reduces seizures in GRIN (gain-of-function) patients by a median of 86% in first-ever commercial clinical trial for GRI Disorders
The potential treatment also led to clinical improvements in other symptoms, and was well tolerated from a safety perspective.
Count Me In 2024
CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.
Coming Soon: A Guide to Treating / Curing GRI Disorders
Last week, CureGRIN brought together the world’s top experts in GRI Disorder Research for a two-day symposium in Toronto, Canada where we discussed the suitability of every type of treatment for each GRI gene and class of variants.
Rare Across America with Kat
My name is Kat Reiher, I am the lead Ambassador for CureGRIN, and I wanted to write about Rare Across America!
Early Results from GRI Census
In just one week, nearly 150 families representing 10 genes and 16 countries have completed and submitted the GRI Census.
GRICON25
GRICON25 brings together GRI families, researchers and clinicians, and industry representatives from around the world to educate, collaborate and network for treatments and cures for GRI Disorders.
June 2024 GRI Genes Research Roundtable
New research revealed involving a clinical trial through GRIN Therapeutics, as well as an update to research on GRIN2B mice.
