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Remi

Remi is a sweet, loving little girl with a BIG personality. She loves Minnie Mouse, animals, and babies. She enjoys riding her bike, playing outside, doing puzzles, and playing with her Barbies. She has one big brother who she absolutely adores.

Imogen

Despite everything, Immi is a social butterfly. Her eye contact is captivating, her laugh is infectious, she is cheeky beyond words. 

Artur

Artur is a positive, friendly boy, not shy, and very sweet. Artur welcomes everybody with open arms and gives you the feeling you are the hero of the day.

Let’s Talk About Money

Today, I want to be transparent with you about how much money we have to spend on treatments and cures, how far that will take us, and exactly why we need your help to go further.

Camila

I love swimming, I love dancing and I love horseback riding and I am eager to continue developing against all odds with the help of my parents and family.

Count Me In 2022

CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.

Samantha

Samantha loves to swim, to listen to music and to try all kinds of foods. She’s affectionate and capable of love and she gets a mischievous smile when she is trying to sneak a snack when you are looking elsewhere.

Reagan

Reagan is the happiest girl who always has a big smile on her face.

2023 GRI Conference

GRI Conference brings together GRI families, researchers and clinicians, and industry representatives from around the world to educate, collaborate and network for treatments and cures for GRI Disorders.