Bentley
Share This Post
Bentley is a sweet girl who was diagnosed with GRIN1 at just 2 weeks old.
GRIN1 does not define Bentley. She is a baby sister, a granddaughter, the best at sleeping at night and can be the sweetest girl, as long as you are holding her. Bentley has come very far in her therapies, but it has been a very long process for her.
She struggles with high muscle tone, abnormal movements, developmental delays and respiratory issues.
She is involved in numerous therapies to help her symptoms, but with your support, we can hopefully find more therapies to help her tolerate these things better, and maybe one day – a cure.
Read more Posts
Bata
Our only and beloved son, Bata, is 9 years old. While expecting him we imagined what he would be like, and could not wait for him to change our lives for the better. But when he was born, our lives did change.
Imogen
Despite everything, Immi is a social butterfly. Her eye contact is captivating, her laugh is infectious, she is cheeky beyond words.
