Share This Post
We are excited to announce that one of our awesome GRI Families will be working with Lane Glo Bowl South on a Fundraiser for the Cure GRIN Foundation.
As you may know, Aurora has a very rare genetic disorder called GRIN2A. Many GRI Patients are nonverbal, unable to walk and often suffer severe and frequent seizures that are not responsive to medical therapies. The foundation raises money for critical research, as none of the GRI disorders have a cure.
And if you can’t make it to the event, you can donate!
Read more Posts
August Newsletter: So much to learn about GRIN Disorders…
Share This Post Share on facebook Share on linkedin Share on twitter Share on email As parents of children with GRIN Disorders, we crave to
Let’s Talk About Money
Today, I want to be transparent with you about how much money we have to spend on treatments and cures, how far that will take us, and exactly why we need your help to go further.
