Count Me In 2022

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CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.

Our main focus is on funding research to answer the “10 Essential Questions” outlined in CureGRIN’s Research Roadmap.

We recently asked researchers to submit proposals to answer these questions and we received applications asking for more than $2-million.

The more money we raise the more we can invest in this life-changing research.

Fundraising Simplified

Rare disease parents are busy! For 2022, we’re providing more options, training, prizes and support to make fundraising less complicated and more fun. We’re providing more options for you to fundraise however works best for you, whether that’s using our software to build a customized fundraising page for your child, setting up a Facebook campaign, or simply printing out a pledge sheet and collecting cash or checks.

We’ll send you CureGRIN merch for hitting different fundraising targets. You’ll also get entries into a drawing for big prizes including a suite for three nights next March at the Royal Sonesta Cambridge Hotel for GRI Conference 2022.

We’re also providing support on everything from how to set up a fundraising page to the psychology of getting over the fear of asking for donations. We provide a detailed fundraising guide, host a Count Me In discussion group on GRI Connect, and attend office hours where we can help you set up your campaign in real time.

It’s time for every GRI family to step up!

There are at least 1,500 patient families in our GRI community, but fewer than 100 have participated in fundraising campaigns. If you haven’t participated yet, this is your chance to join.

You don’t need to raise a lot to make a big difference in our search for treatments and cures.

$40 will pay to house a cage of GRI research mice for a month.
$75 will pay to collect blood from a GRI patient for research purposes.
$150 will pay for a PhD student to spend a full day on cure-focused GRI research.
$3,750 will pay to turn a patient’s blood into iPSC lines, which can be grown into Neurons or organoids (also known as mini-brains).
$4,500 will pay to do functional analysis on a specific variant in a GRIA, GRIK or GRIN gene.