On October 23rd, our sweet baby boy suffered with his first seizure followed by 4 more in the next 3 days and was hospitalized on October 27th. After MRI/cat scans, the doctors couldn’t find anything. No fevers, no infections, nothing to explain why he was having them. Even through all the sticks and machines connected to him, he was the happiest baby.

After many tests, Dreson was diagnosed with epilepsy. They sent us home with daily medication and life went on. While it was a sudden twist for us, we were not ready for what was to come. At his next check up we decided to ask for a genetic test to see if epilepsy was something that was passed on to him since we never suffered from it. We waited and waited for the results. Days turned into weeks and weeks turned into months and then we got the call that changed our lives forever.

On Jan 15th, Dreson was diagnosed with a rare genetic disease called GRIN1. Less then 100 people in the WORLD have been diagnosed with this disease. The doctors could only tell us he would possibly have developmental delays and intellectual delays. We stayed up all night trying to research this disease. All we could get was it was a neuro-developmental disease and that it caused his seizures! We also discovered that Dreson would possibly have movement disorders and poor muscle tone throughout his body.

Milestones started to pass and Mommy intuition knew something wasn’t right. Then at 6 to 7 months he still couldn’t couldn’t sit up on his own. In March, we got Dreson signed up for therapy. While Dreson has made progression, we still have so much work to do. We now know that sitting up alone, crawling, walking or talking are things that he may never do!! But we are strong believers of the saying “Delayed, but not denied!” Some days are better than others, but we pray over him daily and advocate for Dreson every chance we get.

Today Dreson hasn’t said MAMA or DADA nor has he started to crawl or take those first steps, but he has filled our home daily with laughter and wet kisses. Looking into the future we’re not sure where life may take us, but what we do know is we’re going to provide Dreson with best life possible. LIVE LIFE ONE DAY AT A TIME has literally become our family motto! Will Dreson talk?? Will Dreson walk?? We don’t know. But what we do know is that we’re going to love him 1000 times more every step of the way!

We wanted to share and educate the world about our GRIN1 kiddo and what our family has been dealing with the last 10 months. 

Family and friends, we thank you in advance for the support!! And know that through it all Dreson is STRONG. Dreson is a WARRIOR and Dreson is RARE!