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Get Moving for GRI-25

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We are excited to kick off our 6th annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorders.

Get fit while helping to find treatments and cures for GRI Disorders! Thanks to your support:

    • Awarded $981,565 to date in Research Grants
    • 3 clinical trials are expected to be open to patients in at least four continents. We believe that at least 50% of the total patient population with GRI Disorders will be eligible for one or more of these trials.
    • Our Guide to Treating and Curing GRI Disorders will be another important tool to make a persuasive case to industry to invest in our disorders.
    • 2024 saw the launch of the GRI Census, designed to measure the worldwide population of people with GRI Disorders, as well as family treatment priorities and basic symptomatology.
    • GRI Families raised $532,291 in 2024!

 

We’re recommending a fundraising goal of at least $500, but every dollar helps in the search for treatments and cures. Check out our Fundraising Toolkit with tips to help you reach your goal!

How to Participate:

  1. Register as an Individual/Team: Just get out and walk or run and track your distance. Share your journey to help spread awareness and fundraise. 
  2. Sponsor a Team: CureGRIN will virtually promote your generous support to our email list that includes supporters from around the world, as well as through website recognition and social media. For more information, check out our Sponsorship Guide and contact lauren@curegrin.org.
  3. Organize a Live Event: If you are interested in hosting a family meetup in your area, please contact brittany@curegrin.org
  4. Order your Get Moving For GRI 2025 T-shirt: CLICK HERE TO ORDER YOUR BONFIRE SHIRT! Sponsors have until May 23 to submit a sponsorship for a chance to appear on the back of the shirt. Allow 1-2 weeks for delivery. 
  5. Donate: Can’t participate? Support GRI Disorder research by donating.
  6. Help spread the word: Share our posts and help fundraise for an individual, a team or CureGRIN.

We will be giving away CureGRIN swag (t-shirts, car decals, and more)! During the month of June, we encourage you to set a distance challenge of your choice:

  • Half marathon (13.1 miles / 21.1 km)
  • Marathon (26.2 miles / 42.2 km)
  • Ultramarathon (50 miles / 80.5 km)

If the suggested distances are not a big enough challenge for you, we’ve got a few competitive and fun categories for you overachievers to take on:

  • Fastest to complete the ultramarathon challenge
  • Most miles covered during the 30-day challenge
  • Most miles in one day
  • Most funds raised by an individual
  • Most funds raised by a team
  • Most creative team names
  • Photo contests


Register by May 30 to receive some cool incentives!

  • Sign up for a $250 Family Sponsorship and receive 2 FREE t-shirts!
  • Teams with the most team members will receive CureGRIN bracelets!
  • Teams with the largest number of donors will receive 1 FREE t-shirt!
  • Teams with the largest donations will receive 1 FREE t-shirt! 

Be sure to share your challenge photos on your Social Media using the hashtag #GetMovingForGRI

Check out last year’s live events for inspiration and watch out for our 2025 live events!

Ready to Get Moving for GRI? Registration opens May 1!

Need instructions to complete your personal fundraising page? See video below!

Thank you to our sponsors!

Gold Sponsors

Silver Sponsors

Team and Family Sponsors

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Events

Count Me In 2024

CureGRIN is looking for GRI Families to help us raise funds for research into treatments and cures, as well as other education and community-building programs provided by CureGRIN Foundation.

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