Greyson

Share This Post

Greyson is a charming, funny and hard working 10 year old. He loves YouTube, video games, swimming and being with his family and friends. He is a loving son, brother, grandson, cousin, nephew, and friend. 

In 2018, following a rare epilepsy diagnosis, Greyson was diagnosed as having a genetic condition known as a GRIN disorder that impacts his motor, communication and academic functioning. Despite having this disorder, Greyson is a very determined young man and has worked incredibly hard to overcome any obstacle he has encountered. 

There are over 500 known kids and adults with GRIN Disorders around the world, and thousands more that have yet to be diagnosed. As genetic testing becomes more widely accessible, the number of people diagnosed is expected to increase.

Although there is a wide spectrum of impact for people who have GRIN Disorders, many people can have devastating seizures, intellectual disabilities, speech and language disabilities, motor skill difficulties and visual impairment. 

Read more Posts

CureGRIN Stories

Vita

Vita was born in August 2013. She is our 5th child. During the pregnancy, I had a strange feeling that something was wrong, but in all the appointments doctors always reassured that everything was fine.

CureGRIN Stories

Ciaran

Ciaran was born on April 23, 2018.  At around 10 weeks old, we noticed that Ciaran wasn’t meeting his milestones.  Countless doctors’ appointments and early intervention visits followed for the next several months with no real answers. 

Skip to content