GRI Connect

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Introducing GRI Connect: Learn and Network with GRI Families, GRI researchers and GRI clinicians around the globe!

What is GRI Connect?

GRI Connect is a new social network for all members of the GRI Community – families, researchers and clinicians.

Families can learn more about their child’s disease, find families with the same variant, and connect with people in different languages. Researchers can learn about the latest research as well as grant and collaboration opportunities. Clinicians can learn more about GRI Disorder symptoms and possible treatment options.

Register for the forums at GRIConnect.community.

Where do I start?

The community can be confusing at first. We’ve built a number of resources in the group to help you make them most out of your opportunity. You’ll need to register before you can access these links.

Getting Started Guide

FAQ (Frequently Asked Questions)

Meet GRI Connect [Walkthrough video]

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Events

Get Moving for GRI 2024

We are excited to kickoff our 5th annual virtual physical family challenge to promote healthy lifestyles while raising money to help find therapies and cures for those living with GRI Disorder.