Kendall was born into this world, 7 weeks early. She spent her first 6 weeks in the NICU, building up strength in her tiny lungs and learning to feed through her mouth. As her condition improved, we were able to take her home to start our next journey.

As months passed, we discovered severe developmental delays and lack of motor skills. At age 1, she started to experience seizures. The doctors suggested Whole Genome Sequence DNA Testing and discovered Kendall had a rare gene mutation, specifically GRIN2D gene mutation. She was diagnosed with a GRIN Disorder. The disorder affects her brain including seizures and causes inability to develop normally like her older sister. At the age of 4, she suffered a Grand Mal Seizure lasting 25 hours. She was intubated and put in an induced coma. Recovery proved to be challenging. Not being able to breathe on her own, Kendall had to get a tracheostomy and g-tube.

Since then, she has been growing and enjoys going to school. She loves to play with her older and younger sister. Seeing her smile brings joy to our hearts and we hope that someday there will be a cure for her GRIN Disorder.