Patient Impact Grant

CureGRIN Continuity of Care Rare Patient Impact Program

UPDATE: Application is closed.

We are pleased to announce we have been awarded a $15,000 grant from Global Genes to provide funding to GRIN Disorder families impacted by the COVID-19 pandemic.

We will be awarding grants of up to $2,500 (U.S. dollars) until the funds are depleted.

This opportunity is open to all GRIN Disorder families worldwide!

To apply you must:

  • Have a child diagnosed with GRIN Disorder (changes in GRIN1, GRIN2A, GRIN2B, GRIN2D genes) on a genetic report.
  • Have a qualifying financial need in one of the 4 funding categories that were designated by Global Genes:
  • Patient access to distance learning support (tutoring, programs, apps, devices, equipment not covered by insurance)
  • Telemedicine and career counseling resources (internet access, smart phone/tablet access)
  • Basic living expenses (rent, mortgage, utilities, food, supplies)
  • Transportation costs to medical appointments (includes tires)

NOTE: Funds may NOT be used for medical expenses including medical and dental bills, insurance premiums, co-payments, deductibles, medications, etc.

  • Complete the application form. 
  • Families who have already received funding from this same grant from GRIN2B Foundation can apply but are capped at $2,500 total per household (per Global Genes guideline). For example, if you have already received $1,000 from GRIN2B Foundation’s Patient Impact Program, you can apply for an additional $1,500 from CureGRIN’s Patient Impact Program.

DEADLINE TO APPLY: Friday, August 14th

We are now accepting applications and our review committee will be reviewing them August 14th. You will be notified of the decision by August 24th.

Review Committee Process:

Your family’s privacy is important to us. Therefore, the review committee will receive de-identified applications with personal information removed. Our review committee will not see names on the applications.

If we have unused funds, we will continue to take and review applications until funds are depleted.

Please email any questions to denise@curegrin.org

Thank you again to Global Genes for providing the funding for this program. We are proud to be Global Genes Rare Foundation Alliance members.

Global Genes is an international nonprofit organization that connects, empowers and inspires the rare disease community, with the ultimate goal of improving the lives of the more than 400 million rare disease patients around the world and their families. If you have a rare disease, contact Global Genes at +1-949-248-RARE.   

Read more Posts

News

Question 9

Essential Question 9 in the Roadmap for a Cure.

Past Events

Get Moving for GRI in Massachusetts

Save the date! For the second year, the Leblanc’s and Forsyth’s are teaming up together to raise money and awareness for GRI Disorders!

Skip to content