Serve on the CureGRIN Board

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Serve the global GRIN, GRIA, and GRIK community (volunteer, remote position)

Would you like to join us on our mission to improve the lives of people living with GRIN, GRIA and GRIK Disorder?

 

If you are a Parent, Grandparent, Sibling, or Caregiver of a person with GRIN, GRIA or GRIK Disorder please consider applying for the CureGRIN Board of Directors.  

As a director you will: 
  • Advance the organization’s mission 
  • Fulfill legal and fiduciary responsibilities
  • Come prepared to board meetings 
  • Hire and oversee the CEO and President 
  • Recruit exceptional new members 
  • Serve on committees 
  • Support the organization’s fundraising plan 

We are looking to add two new Directors. All Directors shall hold the office for a term of three years, which can be renewed. The expected time commitment is in the range of 1-2 hours per week. 

As a global foundation, CureGRIN seeks to best represent the breadth of the global GRI community, including ethnic, racial and geographic diversity. Currently, our board does not reflect this commitment and we are seeking new members who can balance the skills and demographics of the existing board. 

We believe that diversifying our board to reflect different skills, expertise, demographics and/or lived experience will help us better serve the broader community. As such, we encourage applicants who meet one or more of the following criteria:  

  • A passion for fundraising, grant writing, community engagement, communications, advocacy 
  • Legal or finance ∕ accounting experience 
  • Interest in governance policies, practices, and procedures related to non-profit organizations 
  • Expertise in medicine, scientific research, or drug development 
  • Ability to help CureGRIN meet revenue and/or advocacy goals, through access to wealth, funders, or key players 
  • Parent / Grandparent / Sibling / Caregiver of a person with GRIN2A, GRIN2B, GRIA1, GRIA2, GRIA3 or any GRIK Disorders 
  • Residency outside of the United States 
  • Underrepresented race and ethnicity, including black, indigenous and people of color 

All Directors must meet the following requirements during the course of a single calendar year in order to remain a Director in good standing:  

  • Attend and actively participate in at least 80% of board meetings annually. Meetings are held online every other month.  
  • Belong to and actively participate in at least one Board Committee.  
  • Respond to requests for information, votes, or other requests in a timely manner. 
  • Participate in annual evaluation and planning efforts.  
  • Participate in the advancement of CureGRIN’s strategic plan and fundraising plan.   
  • Make an annual gift to CureGRIN Foundation. Gifts of any size are welcome.  

CureGRIN is a parent-led foundation. The inability to meet requirements due to unpredictable care needs of individuals living with GRI Disorder, is considered separately. 

To apply please complete this application by Friday, April 21, 2023. If you have any questions, reach out to heather@curegrin.org.   

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News

GRI Genes Roundtable – Oct 2021

We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 43 participants present for the meeting.