Willow
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Our 4-1/2-year-old granddaughter, Willow, lives in Southwest Colorado. At 18-months of age, she was diagnosed with GRIN1, Loss of Function. When she turned three years old, a local school applied for and received a grant for an aide for Willow so she could go to preschool three mornings a week. The photo above shows her bright-eyed and ready to go. One of the activities she enjoys at school is fingerpainting.
Now that she can sit up unassisted, our sweet girl also enjoys circle time and snack time. She also loves music. The other children are wonderful about looking after her and giving affectionate support. She is very social.
Willow enjoyed the school’s May Day celebration with the other children and liked her May Day crown. She has captured many hearts.
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Zachariah
The diagnosis of GRIN gave us opportunity to reach out and we found our “new family”, a collection of families from all over the world living the same experience. Zach found his genetic Twin and even met him in 2019. We shared experiences, stories, nightmares. We were surprised at the range and degrees of physical and intellectual disabilities across the other Grin kids and Hopeful that one day Zach could do some of these things.
Brooklyn
Brooklyn is our miracle and we could not be more proud of her.
