Important update from Simons Searchlight, our trusted research partner!  

As Simons Searchlight gears up for GRICON25 they’re eager to showcase YOUR family’s information in their data presentation summaries they’ll be sharing.

We are asking our families to complete the following surveys on your Simons Searchlight dashboard by May 24 to be included in this data: 

-Annual Medical History Survey

-Vineland Adaptive Behavior Scales – Third Edition

-Seizure History Survey or Annual Seizure Update

-Child Behavior Checklist (CBCL) 

As a thank-you, you’ll receive a gift card accessible in the ‘Rewards’ section on your dashboard upon survey completion. If you’ve already completed these surveys, thank you!

Feel free to tackle any remaining tasks on your dashboard while you’re in there.

By sharing your family’s information, you’re empowering researchers to understand your genetic story and its connections to the GRI Disorders community. Plus, your data could contribute to further studies and publications on GRI Disorders.

Have questions with surveys or your dashboard? Reach out to the Simons Searchlight team at coordinator@simonssearchlight.org.

Thank you for making a meaningful impact on research by completing your surveys! 

*Not registered in Simons Searchlight? Learn more: www.SimonsSearchlight.org