GRI Disorder Awareness Month – 2024

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Join us for GRI Disorder Awareness Month in March

Get ready for GRI Disorder Awareness Month in March. CureGRIN, GRIN2B Foundation, and GRI parent support groups and associations are partnering in a month-long campaign for all GRI Disorders. Each GRIN, GRIA, GRIK, and GRID genes will be highlighted throughout the month. 

Join us as we share facts about GRI Disorders and inspiring and moving stories about GRI families around the world. We kickoff the event on Rare Disease Day on February 29. GRI Disorders will be celebrated along with approximately 7,000 other Rare Diseases.

GRI Disorders are genetic diseases related to ionotropic glutamate receptors. These receptors play an important role in learning and memory as well as other critical biological functions. Each GRIN, GRIA, GRIK, and GRID gene will be highlighted throughout the month.

We will celebrate those GRI Angels we lost way too soon on March 14 – GRI Angels Remembrance Day.

Want to be featured? Share your story by February 21

We will feature kids and family stories with pictures and videos. Please submit to info@curegrin.org by Feb 21 and please note which GRI gene. See story examples here

Share our posts throughout the month

We invite you to follow us on our social media platforms and share our posts with your friends and families to help spread awareness of GRI Disorders.

Wear your CureGRIN gear

Be sure to order your CureGRIN gear to show your support.

Order and share Stories of GRIN Book

Order your copy of Stories of GRIN. Written by parents, grandparents and even a team of GRIN researchers, “Stories of GRIN” reflects a shared journey of pain, love, joy, resilience, and hope.

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News

GRIN Genes Roundtable – Apr 2021

We brought together researchers and clinicians studying GRIN Disorder, GRIN genes, NMDA receptors, and other ionotropic receptors to discuss and exchange ideas on identifying GRIN research priorities. There were 31 participants present for the meeting.