d.rehner, Author at CureGRIN Foundation

GRIN Mini Conference

Join us for a FREE Virtual Mini Conference for GRIN Families on March 20.

Benjamin

Benjamin Wann was diagnosed with Epilepsy at three years old, after multiple seizure types from myoclonic to tonic clonic lead to status epilepticus.

Andrew’s nurse noticed an “unresponsive episode” in which he momentarily stopped breathing. We would later go on to realize that the episode in question was probably the first of many seizures he would experience.

Alice

At 6 months old, the same day she received the meningococco B vaccine , she had her first convulsive seizure.

Logan

Logan has always had such a sweet disposition. I used to wish that if Logan could have anything in life it would be to be happy and to not be in pain, that wish has come true for the most part.

Lisa

Hello! Our family is from Russia, St. Petersburg! We have a three-year-old daughter and her name is Lisa!

Bentley

Bentley is a sweet girl who was diagnosed with GRIN1 at just 2 weeks old.

GRIN1 does not define Bentley. She is a baby sister, a granddaughter, the best at sleeping at night and can be the sweetest girl, as long as you are holding her. Bentley has come very far in her therapies, but it has been a very long process for her.

Ciaran

Ciaran was born on April 23, 2018. At around 10 weeks old, we noticed that Ciaran wasn’t meeting his milestones. Countless doctors’ appointments and early intervention visits followed for the next several months with no real answers.