Remi

We go through many different emotions during this journey we are on with Remi. Life is hard at times but so very sweet other times. When Remi is happy, she is so much fun to be around.

The Value of a GRIN Disorder Community

We recently asked our GRIN Disorder families what having a GRIN community has meant to them.

Chloe

We dream for the moment when our little girl can give us a caress or run to meet us. We dream that one day she can see us and see how much love we have for her. Chloe is a fantastic and strong girl, always cheerful and serene.

Adam

Our journey began on November 23, 1991 when our son, Adam, was born. His entrance into our world was not easy.

Charlotte

For many parents, a GRIN diagnosis results in many questions and very few answers.

Coco

This is not the life we expected for Coco or our family, however our love for her is infinite and the joy and happiness she brings to our family is immeasurable. Our lives have become much more intentional now and focused on Coco living her very best life.

Lacey

Lacey still can’t talk yet, but me and mom can tell what she wants 9 out of 10 times with her actions or approximations. It still can be frustrating, because most of the time she doesn’t even know what she wants. But when she repeats I love you as “wub you.” it melts my heart.

Dominik

Immediately after giving birth, he had to be resuscitated and then transferred to another, better-equipped, hospital. Dominik was really a small baby (2370g), but very strong from the beginning so everything turned out well, if only for a moment

Emerson

Emerson is a fun, busy little 2 and half year old boy with a ferocious appetite. Emerson was born healthy on his due date and had no noticeable issues until his 4-month checkup.

Zachariah

The diagnosis of GRIN gave us opportunity to reach out and we found our “new family”, a collection of families from all over the world living the same experience. Zach found his genetic Twin and even met him in 2019. We shared experiences, stories, nightmares. We were surprised at the range and degrees of physical and intellectual disabilities across the other Grin kids and Hopeful that one day Zach could do some of these things.