2024 GRI Virtual Conference
Join others from around the world at the 2024 GRI Virtual Conference. Learn more about what’s happening in GRIN research and hear the latest developments from clinicians, researchers, and family members.
How 2023 brought us closer to treatments and cures
Since our founding in 2019, CureGRIN has been working tirelessly alongside researchers, clinicians and industry to accelerate the path to treatments and cures. There are many promising compounds and genetic treatments, but there are barriers in getting those to clinical trial. Adding ICD-10 codes for these nine genes would remove a significant barrier to clinical trials, by helping us to better understand where our patients are located.
Rare Disease Day
Join us and #lightupforrare on Rare Disease Day, February 29! Light up in solidarity with over 300 million people living with a rare condition and share our colors.
Alex
Alex is the happiest little child out there. He has the absolute BEST smile and when he’s excited, the whole room knows it because he just bursts out laughing.
Evie
For those of you who haven’t met my Genevieve yet, let me tell you her story, she is a very special little girl…
Emmersyn
Emmersyn, aka Emma, is my little girl; she is my second daughter and the bond that brought our blended family together in the summer of 2014.
Drew
Drew is my 12-year old little force of nature! She has a constellation of diagnoses and challenges, but she is much much more than all those labels. Drew has Level 3 Autism (severe-to-profound), ADHD, Epilepsy, severe Emotional Dysregulation, Sensory Processing Disorder and, we just found out, the GRIA2 genetic mutation.
CureGRIN’s Letter to the CDC Regarding ICD-10 Codes for GRI Disorders
Since our founding in 2019, CureGRIN has been working tirelessly alongside researchers, clinicians and industry to accelerate the path to treatments and cures. There are many promising compounds and genetic treatments, but there are barriers in getting those to clinical trial. Adding ICD-10 codes for these nine genes would remove a significant barrier to clinical trials, by helping us to better understand where our patients are located.
Richie
We live in the moment, we cry hard and laugh even harder, we watch the same episodes of wheel of fortune and Jeopardy daily, we are loud and make scenes in public and we love hugs. Most importantly we are grateful to be alive.
CureGRIN honors award winners at #GRIcon2023 Gala
At the 2023 GRI conference in Boston, MA, the CureGRIN Foundation recognized 17 amazing people/organizations with our first-ever GRI Patient Impact Awards
