Count Me In 2021

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CureGRIN is looking for GRI Families to help us raise funds for research for a cure.

Researchers agree that a cure for GRI Disorder is possible, but WE NEED YOUR HELP! The momentum and knowledge our GRI Community is building is truly remarkable and leaves us even more hopeful that we will find a cure for our GRI loved ones someday.

But nothing will happen without funding. Now, more than ever, WE NEED YOUR HELP to push forward our research efforts.

The support you raise is crucial for funding CureGRIN’s three-year research roadmap that focuses on 10 essential research questions that need to be answered in order to find cures and treatments for GRI Disorder.  

We are grateful for your support in raising funds from family, friends and other contacts. 

Our recommended goal for a GRIN Champion Family is $2,500. But we know each family’s situation is different, so you can increase or decrease your goal during registration. Even families that raise $500 or $1,000 bring us closer to finding a cure.

Starting November 1st, we will kickoff our Count Me IN campaign. As a GRI Champion, you can set up a personalized fundraiser page with your kid’s story and picture. We will give you instructions and everything you need to participate.

Our goal is to find cures and therapies for GRI Disorder as quickly as possible. Can we count on you to say, “Count Me IN”?

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News

GRI Genes Roundtable – Jul 2021

We brought together researchers and clinicians studying GRI Disorders, GRIN genes, GRIA genes, GRIK genes, NMDA receptors, and other ionotropic receptors (AMPARs, kainate receptors, and delta receptors) to discuss and exchange ideas on GRIN, GRIA, and GRIK variants. There were 50 participants present for the meeting.

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