GRI Stories

Harrison loves the water, butterflies, dragonflies, chickens and cows being his favourite things!

Hi everyone, I’m Marius! I am 11 years old with the GRIA2 gene mutation.

Alex is the happiest little child out there. He has the absolute BEST smile and when he’s excited, the whole room knows it because he just bursts out laughing.

For those of you who haven’t met my Genevieve yet, let me tell you her story, she is a very special little girl…

Emmersyn, aka Emma, is my little girl; she is my second daughter and the bond that brought our blended family together in the summer of 2014.

Drew is my 12-year old little force of nature! She has a constellation of diagnoses and challenges, but she is much much more than all those labels. Drew has Level 3 Autism (severe-to-profound), ADHD, Epilepsy, severe Emotional Dysregulation, Sensory Processing Disorder and, we just found out, the GRIA2 genetic mutation.

We live in the moment, we cry hard and laugh even harder, we watch the same episodes of wheel of fortune and Jeopardy daily, we are loud and make scenes in public and we love hugs. Most importantly we are grateful to be alive. 

Our journey through this process and with our gorgeous Eddie has taught, and continues to teach us all so much. His joy in the everyday is something we always treasure.

We parents are trying not to ask ourselves questions about what Stella will be like when she grows up and what she will come to do, but the biggest goal is and always will be to keep her in good health and above all to always make her happy.

Brooklyn is our miracle and we could not be more proud of her.