GRI Stories

GRIA, GRID, GRIK, and GRIN

Ashleigh

Ashleigh has a very rare genetic disorder called GRIA2 related neuro development disorder. Ashleigh is 15 years old and her condition was first diagnosed in 2019.

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Jaydan

Jaydan is amazing. She is a loving, caring, hilarious daughter, sister and friend. Jaydan is nine years old and is doing rather well now, considering her challenges, but her story didn’t start this way.

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Katie

Our daughter Katie is an only child, is almost 16 years old, and has a rare gene mutation called GRIK2.

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Victoria

My daughter, Victoria, was born on 10/28/2018 as a healthy girl. There was an episode of fainting in the first month of her life. At that point, we had no diagnosis.

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Levi

Levi loves playing with his brothers, silly songs, dancing, eating and playing with bubbles.

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Wren

Wren is an inspiration to us daily, and the sweetest, toughest, bravest girl we’ve ever met.

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Elaina

Elaina is an incredibly happy kid. She loves music, dancing and everyone around her! She loves snuggles with her doggies and hugs with her baby dolls.

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GRIN Sibling: Sierra

Sierra Wasielewski, Sister to Austin, shares her experience on being a sibling to her brother with GRIN Disorder.

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GRIN Sibling: Abby

Abby Pellitteri, Twin Sister to Owen, shares her experience on being a sibling to her brother with GRIN Disorder.

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Timothy

Our son, Timothy, is our third and last child. He was born in 1999 in Knoxville, Tennessee, three years younger than his sister and six years younger than his brother. At first everything seemed just fine with him.

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