GRI Stories

My daughter, Victoria, was born on 10/28/2018 as a healthy girl. There was an episode of fainting in the first month of her life. At that point, we had no diagnosis.

Levi loves playing with his brothers, silly songs, dancing, eating and playing with bubbles.

Wren is an inspiration to us daily, and the sweetest, toughest, bravest girl we’ve ever met.

Elaina is an incredibly happy kid. She loves music, dancing and everyone around her! She loves snuggles with her doggies and hugs with her baby dolls.

Our son, Timothy, is our third and last child. He was born in 1999 in Knoxville, Tennessee, three years younger than his sister and six years younger than his brother. At first everything seemed just fine with him.

Our only and beloved son, Bata, is 9 years old. While expecting him we imagined what he would be like, and could not wait for him to change our lives for the better. But when he was born, our lives did change.

Dean was born a healthy baby. Around the time he was two to four weeks old, we started to notice some odd movements. They were like a startle reflex (where you hear a loud noise and get startled). But Deans were more exaggerated and repetitive.  They were randomly happening throughout the day.

Our son Maximilian has GRIA Disorder. GRIA Disorder is an ultra-rare genetic condition caused by a change in one of four GRIA genes. GRIA genes contain the code to create AMPA receptors, which are essential for learning and memory.